6th Scan Results and Update - 11/4/25

I got my results back and so excited to share that I am No Evidence of Active Disease!!!!

I shared the results on my social media earlier today, but now sharing here as some of you don’t follow me on social media.  Let’s just say that I am so happy to share this kind of news a second time!

It’s been way too long since I have received good news. It feels like that’s what I continue striving for day in and day out.  The hard work and feeling like I am doing all the right things, the prayers, the continued fight.  Feeling like I am doing more than enough and hoping it will pay off.  Well today, my prayers were answered.  I finally feel this weight off my shoulders and able to take a deep breath for a while.  I needed this.  I deserve this so much.

I ended up getting the results through MyChart early on Monday morning.  I of course had to wait over the weekend, which is cruel and shouldn’t be allowed.  The waiting is so tough.  But Monday morning came and I saw the results.  It said mixed response followed by an area of progression in my sacrum.  They also found a couple small spots in my lymph nodes.  Before I opened MyChart, I hugged my mom as I read the results.  Then seeing this, my heart dropped and I was so devasted again from progression.  I hate reading the word progression.  It’s an awful word.  Of course, at this point, my head was spinning to worst case scenario, and I was simply over it.  Thankfully though, I was to meet back with Dr. Lassi today on Tuesday, just a day after getting results like this.

At the appointment today, I fully expected bad news.  But right from the get-go, Dr. Lassi comes in and says, “Your results actually look great.” What? I was stunned.  She said that she had a talk with radiologist and they discussed the results. It turns out that the spot on my sacrum was just leftover from radiation, basically dying off cells and the spot on my lymph nodes was so small and just reactive, not cancer.  Hearing her say these words made me feel so elated, I just can’t express the feeling I had wash over me in that moment.  She said I am no evidence of active disease and talked about where we were a year ago with over 21 tumors on my body to now.  Remarkable. 

That being said, the radiation I had back in September is working.  Those spots were all clear on the scan, and a good indicator that radiation works.  I am so so thankful I was able to join that clinical trial at Mayo, otherwise I don’t think I would be in this situation.  Everything is meant to be.  Dr. Lassi even said if there is a spot or two that pops up in the future, that she would try radiation again, since it worked so well for me the first time.  This gives me so much hope. 

As far as next steps, I plan to continue on Enhertu every three weeks. I just had my 15^th infusion earlier today.  She wants to have me get a scan in two months instead of three, just to catch anything if it comes up.  So my next scan is already scheduled for January 5^th.  This also could not have come at a better time.  I now get to enjoy the holidays these next two months without worry or fear.  I get to be with family in peace. I get to continue to live. 

Also monthly, she wants me to get a blood draw for the cancer antigen 15-3, which tells you how much cancer is in your body.  I recently got that test last week and it was a 26.  Normal levels are below 25.  When I first started this journey, that test was in the 700s.  This test will be good to see every month as the first indicator that my cancer is at bay or not, other than the scans.

My mom joined me today at my appointment and we both felt a sense of relief.  A celebration is in order.  Since I am a little tired from my infusion today, we plan to go to a nice dinner together tomorrow evening to celebrate. 

And lastly, I know that the news won’t always be what we want with stage 4, so soaking in the good results when I get them.  NEAD is the best I can ask for on this journey and I plan to stay this way for a long time.  My body better get in line because that is the plan!

Thank you to all my family and friends, near and far, for the love, support, kindness and prayers.  Thank you to these amazing drugs and my incredible care team at M. Health Fairview and lastly, thank you to God. He has big plans for me. 

NEAD baby!!

Love, Stacy